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The Long Haul

 

Autism affects everyone, not just the child. Many marriages have been adversely affected if not fallen apart because of the excruciating stress and cost borne by the family. In many cases, the siblings of children with autism feel neglected. Family members are also more susceptible to depression. Financial strains can be overwhelming.

Parents need to acknowledge that they need help and support. Help via the Internet, from a qualified psychologist, understanding family/relatives, therapists or friends. Involve as many people as possible in your fight against autism. Never be reluctant or embarrassed to seek help.
Just talking can be therapeutic, especially if you talk to parents in a similar situation. Talking about your problems and frustrations can make you see things in a new light. You might find that others share the same experiences.

Find at least one “buddy”, a parent in a similar situation, who can get along with you and has a similar intervention programme. Share tips, training materials, toys, videotapes etc. Share your ups and downs; and let off steam whenever you need to!

Joining a parent support group that is easily accessible makes a big difference. Your sources of help and mutual support are so much greater. You can learn from the experiences of those who have been through what you are going through now.

Furthermore, with strength of numbers and unity in purpose, great undertakings become possible. Common concerns of parents can be addressed and Advocacy can bring about changes in education resources, support from the society and authorities etc.

Taking a break is very important too. Family members should remember to take time for themselves. Parents should remind themselves not to neglect their marriage. Have some time for just the two of you.

If there are other children, it is equally important to appreciate that they need attention too. Try to plan a special time once a week between each parent and child without the special child being around.

Regular exercise is essential for the primary caregiver. If one parent goes to work and the other stays home with the child, the person at home needs to have a chance to get out on a regular basis.

Last but certainly not least, be prepared for the ups and downs.