DAMAI is a non-profit organization started by the disabled for
the disabled in 1998. Our primary objective is to provide people with disabilities
with the necessary skills to be independent. Since its inception five years
ago, DAMAI has contributed immensely towards this goal. We are proud to say
that we have brought about significant changes in the lives of those who
have approached us. In brief, Damai is a stepping stone for disabled
individuals who decide to embark on the long and arduous journey towards
independence. Provides counselling, home visits, wheelchair workshops,
computer training, language classes and other activities.
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Douglas Bader Society,
Kuala
Lumpur
Name 2
(Persatuan Douglas Bader Kuala Lumpur)
Address
c/o
MedicalRehabilitationUnit University
Malaya Medical Centre
59100
Kuala Lumpur
The Douglas Bader Society,
Kuala Lumpur
was formed in September
2004, the first overseas branch of the Douglas Bader Foundation (UK). Its
main objective is to promote and advance the physical, psychosocial and
spiritual welfare and benefit of persons who are without limbs. It aims to
get the target group i.e. the amputees themselves as the prime movers of
the organization. The society will be involved in providing support for
amputees and promote their empowerment e.g. through education programmes,
increasing awareness on information technology, to enhance the maximization
of their potential to be useful members of the society and others. Runs the
UMMC Douglas Bader Walking School
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Down Syndrome Parent Support Group
Name 2
Kumpulan Sokongan Sindrom Down
Address
KSSD-HUKM-KDSF
Mrs Stella Chan-Cheong
14 Jalan Jaya
Taman Midah
Cheras
56000 Kuala Lumpur
Telephone
03-91719063 / 012-2987801
Email
chitchatsc@yahoo.com
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Down Syndrome Parents' Support Group
Address
23 Jalan SS15/5D
47500 Subang Jaya
Selangor
Telephone
03-56343076
Email
kamariah_amin@yahoo.co.uk
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Heart Club
Name 2
A part of the Calvary Life Ministries
Address
Unit 20-2, Jalan PJU 8/50
Damansara Perdana
47820 Petaling Jaya
Selangor
Telephone
03-77103360
Fax
03-77263315
Email
heartclub@clm.org.my
Description
A club for children (ages 7-18 years) with special needs and
learning difficulties. Meets every 3rd Saturday of the month from 3-5pm.
Provides opportunities for children to experience different types of
creative activities.
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Heart Club Plus
Name 2
A part of the Calvary Life Ministries
Address
Unit 20-2, Jalan PJU 8/50
Damansara Perdana
47820 Petaling Jaya
Selangor
Telephone
03-77103360
Fax
03-77263315
Email
clm@clm.org.my
Description
A self-help group for parents and caregivers of special
children. This is a parent led group that offers support and encouragement
in caring for oneself and one’s family. Meets every 3rd Saturday of the
month from 3-5pm.
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Here I Am - Parent's Support Group
Address
No 5 Jalan SS1/41A
47300 Petaling Jaya
Selangor
Telephone
03-78772651, 012-2872686
Fax
03-83178998
Email
g_darshini@hotmail.com
Description
Parent Support Group for parents of children with any learning
disability.
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Hua Ming Autism Society (HMAS)
Name 2
(Persatuan Penjagaan dan Latihan
Kanak-Kanak Autisik Hua Ming)
Address
No.2 Jalan 20/8,
Taman
Paramount
,
46300 Petaling Jaya, Selangor
Persatuan Penjagaan dan Latihan Kanak-Kanak Autisik Hua Ming
which is commonly known as Hua Ming Autism Society (HMAS) in short, was
started and established by a group of parents of children with autism in
early 1996 and was officially registered with the Registrar of Societies on
18 December 1996. At present, HMAS has a total membership of more than a
hundred people. HMAS's main objectives, amongst others, ate to provide
education and training to children with autism and counselling to their
parents, and also to develop public awareness of autism and promote
community involvement and support for the people with autism and their
families.
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Impresif Care Home
Address
No 11, Jalan Bukit Mentri Utara 7/4
46050 Petaling Jaya
Selangor
Telephone
012-354 8075, 012-233 7660
Description
Provides assisstance and respite care services for amputees
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Institut Pembangunan Keluarga
& Kanak-Kanak NURY
Name 2
The NURY Institute of Family & Child Development
Address
No. 9-11, Lorong Wangsa 5A,
Jalan Wangsa 5,
Bukit Antarabangsa,
Ampang , Selangor.
Telephone
03- 4107 5487
Description
Established in 1984. Runs development programmes for special
children.
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Kiwanis Down Syndrome Foundation (National Centre)
Address
Lot 13490, Jalan Jenjarum
Off Jalan SS23/1,
Taman
SEA
PJU 6A, 47400 Petaling Jaya, Selangor
The Kiwanis Down Syndrome Foundation is committed to the
welfare of children with Down Syndrome, its main focus being the education
of these children below 6 years old. Its activities are geared toward the
setting up and management of Centres of Education for Children with Down
Syndrome below 6 years old where emphasis is on: Maintaining and upgrading
Special Education Programmes; Training of teachers in Special Needs
Education; Counselling of families of children with Down Syndrome;
Maintaining a comprehensive Resource Centre with information on Down
Syndrome and Special Educational aids; and Creating public awareness of
Down Syndrome.
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Kiwanis Stroke & Neurological Rehabilitation Centre
Name 2
Pusat Pemulihan Neuro & Strok
Address
No. 62 Jalan Gasing,
Petaling Jaya
Telephone
603-7960 9049 / 603-7960 5309
Description
The Centre provides services to help maximize recovery for
individuals with stroke, spinal cord injury, Parkinson Disease, prevent
complications, and to assist the patient towards independence with
confidence and dignity. With improved physical independence, the patient
can participate fully in family, social and vocational pursuits. Equipped
with facilities for neurological rehabilitation, the Centre is run by
physiotherapists assisted by trained volunteers. The patient and his/her
family form part of the team.
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Majudiri Y Foundation for the Deaf
Name 2
(A project of YMCA KL)
Address
c/o YMCA Kuala Lumpur
95, Jalan Padang Belia,
50470 Kuala Lumpur
The Malaysian Information Network for the Disabled (MIND) was
established to promote and improve awareness, availability and
accessibility of information that can help people with disabilities live,
learn, love, work and play independently. Focusses on providing counselling
and rehabilitative services. MIND was founded by Associate Professor Dr.
Zaliha Omar, Head of the Medical Rehabilitation Unit of the University of
Malaya Medical Center. This project was undertaken by a small group of
volunteers (with and without disabilities) working in the rehabilitation
and disability-related field as part of the Department's continuing efforts
to provide community development programs and services for persons with
disabilities in Malaysia.
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Malaysian Christian Association For Relief (Malaysian CARE)
Name 2
Services* People with Special Needs
Address
No 15, Jalan 3/146
Metro Centre, Bandar Tasik Selatan
57000 Kuala Lumpur
This service supports and trains people with learning
difficulties by providing :- Early Intervention Programmes (below 6 years),
Day Training Centre - Independent living skills (13 - 25 years); Employment
Support & Placement; Toy Library and Parents Resource Centre and
Referral Services. Crucial needs of non-disabled children who come from
poor and disadvantaged communities are also helped. Has an Early
Intervention Programme, Toy Library and Resource Centre in partnership with
SPICES at Wangsa Maju. They also run Pusat Harapan, a non residential
centre to assist people with mental health problems.
We are aiming to help families within Malaysia & South
East Asia with information, resources & support for ADHD, ADD, specific
Learning Difficulties, Dyslexia, Dyspraxia, OCD(Obsessive Compulsive
Disorder), ODD (Oppositional Defiance Disorder),CD (Conduct Disorder),
& other related "Hidden" disabilities. If you would like to
discuss with other like minded people, ADHD & other disabilities &
you live in
Malaysia
or
South East Asia
, please join us. Also Organises talks
in the Selangor and FT Areas
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
National Association of People with Disabilities
Malaysia
Address
No 39, Jalan 20C
Off Jalan Badam 1
Taman Cheras
56100
Kuala Lumpur
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
National Stroke Association of
Malaysia
(NASAM) - Ampang
Branch
Address
No 9, Lorong Awan 1
68000 Ampang
Selangor Darul Ehsan
Visit the Pusat Kegiatan from 1:00pm to 5:00pm
Mondays-Fridays, or 9:00am to 1:00pm on Saturdays
Description
An Association concerned with the education and welfare of
dyslexia children and adults. Activities at the Dyslexia Association
include : Small-Group Tuition Classes, Diagnosis and Assissment Services,
Parent Seminars and Workshops, and Activities. Children may join their
3-month session that is available from Mondays - Fridays 8.30am - 5.30pm.
Alternatively, their Saturday classes from 8.30am - 12.30pm (RM200 @ mth).
1:5 Teacher-Student ratio. School holiday sessions are also available.
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Persatuan Kanak-Kanak Spastik Selangor Dan Wilayah
Persekutuan
Name 2
(Spastic Children's Association of Selangor and
FederalTerritory
)
Address
No 14, Lorong Utara PO Box
48
46700 Petaling Jaya, Selangor
There are at present about 210 spastic children from ages 1 to
18 receiving education therapy and rehabilitation training at the centre.
Another about 30 spastic adults work in the sheltered workshop. There are
several facilities at the Spastic Centre to provide free transport,
education and treatment (including physiotherapy, speech therapy and
occupational therapy) to the spastic children. Some of these facilities
include clinics, classrooms, hydrotherapy pool, training kitchen, computer
laboratory, library, music room, buses, shops, special sports training
equipment and a multi-purpose hall. Other therapies include hydrotherapy,
hippotherapy (riding for the disabled) and selective posterior rhizotomy.
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Persatuan Kebajikan & Penjagaan Kanak-Kanak Istimewa
Kuala Lumpur
Address
No 2, Jalan Wangsa Siaga 1
53300 Wangsa Melawati
Kuala Lumpur
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Persatuan Kebajikan Kanak-Kanak Istimewa Insan Wilayah Kuala
Lumpur & Selangor
Address
No 624, Jalan Riang 6
Jalan Kuchai Lama
Taman Gembira
58200
Kuala Lumpur
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Persatuan Orang Cacat Pendengaran Selangor (POCPS)
Name 2
(Selangor Association of the Hearing Impaired)
Address
No 25A, Tingkat 1
Jalan Pasar Baru, Off Jalan Meru
41050 Klang, Selangor
Provides support and assisstance for persons with hearing
impairment in Selangor. Organises sign language courses, social activities,
sports as well as training in handicraft and performing arts.
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Persatuan Orang Pekak Kuala Lumpur
Name 2
Kuala Lumpur Society for the
Deaf (KLSD)
Address
9B, 2nd Floor, Kompleks Perniagaan Seri Selangor
Jalan San Peng
55200
Kuala Lumpur
Mondays-Fridays 9am-5pm, Saturdays 9am-1pm. Closed First
Saturdays.
Description
Provides training, education and social activities for persons
of all ages with hearing impairment. Also conducts courses in Sign Language
and Information Technology.
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Persatuan Pusat Jagaan Wilayah Persekutuan Kuala Lumpur
Name 2
(Kuala Lumpur Care Centres Association)
Address
No 9 Jalan Tembaga,
Off Jalan Chan Chin Mooi,
Titiwangsa 53200,
Kuala Lumpur
Telephone
03-40212415, 012-2708417
Fax
03-40212415
Email
shaaru@tm.com.my
Description
Serves to coordinate, regulate and advice all care centres in
the
KlangValley
. Provides courses and
seminars for effective and proper magement of care centres.
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Persatuan Sindrom Down Negeri Selangor
Name 2
(In Partnership with Persatuan Sindrom Down
Malaysia
)
Telephone
019-2275083
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Pertubuhan Kebajikan Tunanitra (BUTA) W.P. & Selangor
Address
28 Blok D, Rumah Pangsa PKNS
Jln Tun Razak
Kampung Bahru,
Kuala Lumpur
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Pertubuhan Keluarga Orang-orang Bermasalah Pembelajaran
(PERKOBP) Sel & WP
Name 2
(Society of Families of Persons with Learning Difficulties)
Address
133 Lot 1995,
6.5 Miles, Jalan Puchong
58200
Kuala Lumpur
Postal Address
PERKOBP
No 4 Jalan Hujan Bubuk Dua
58200
Kuala Lumpur
PERKOBP has its origin as an informal support group formed in
early 1992 by a group of parents who were concerned with the welfare of
their children with learning difficulties. Their main aim is to equip their
special children with skills for independent living. Registered with the
ROS as a society on 20th Nov 1993, the group now has about 300 members.
Membership is opened to parents/guardians of persons, aged 17 years and
above, with learning difficulties. Some of their activities include The
Laundry Project, The Group Home Project, The Bakery Project and the The
Organic Farm Project.
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Pusat Pemulihan Kesihatan Rotary-PERKIM
Name 2
(Kuala Lumpur Rotary - PERKIM Rehabilitation Centre)
Address
Flat Sri Perak, Tingkat Bawah, Blok 37
Bandar Baru Sentul
51100
Kuala Lumpur
The
Kuala Lumpur
Rotary - PERKIM Rehabilitation Centre helps the elderly victims of stroke
and neurological dosorders, and post-operative patients who require social
and therapeutic services.
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
REACH Ministry for the Hearing Impaired
Name 2
(Reaching out Education and Awareness in society, Caring for
the Hearing Impaired)
Address
c/o St.Francis Xavier Church
135 Jalan Gasing, Petaling Jaya
,
46000
, Selangor
REACH Ministry for the Hearing Impaired, SFX, PJ commenced in
1992 with 3 deaf persons and 1 interpreter. Over the last 10 years, through
the initiatives of this Ministry, more than 45 deaf persons have been
identified throughout KL Archdiocese. We are parish-based,
serving/assisting the KL Archdiocese to provide pastoral care for the deaf.
We network with parishes to pave the way for active participation and
involvement of Deaf people in parish life, and encourage deaf leadership.
Currently, there are interpreted Masses for the deaf available under the
REACH programme in the PJ and Klang districts. In addition, we provide
tailored programmes (faith, education and awareness, self development and
general knowledge) for the Deaf. Has programmes in PJ, Klang,
Penang
, Buttorworh and Kuching.
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Selangor and
FederalTerritory
Association
for the Retarded Children (SARC)
Name 2
(Persatuan Kanak-Kanak Cacat Akal Selangor & Wilayah
Persekutuan)
Address
Wisma Harapan,
No.522 Jln Sultan Abd Samad,
Brickfields,
50470
Kuala Lumpur
Telephone
03-22741457, 22741475
Fax
03-22734933
Email
wisma_harapan@yahoo.com
Operation Hours
Mondays-Fridays 8am-4pm
Description
Serves Children and Adults with a mental handicap including
Down Syndrome, Autism and Slow Learners. Runs a number of Education and
Training Centres (SARC Centres) which provide EIP, CBR, Vocational and
Worksop Training. Also organises Sports and social activities
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Society for the Interpreters of the Deaf (SID)
Name 2
(Society of Families of Persons with Learning Difficulties)
The Society of Interpreters for the Deaf in Selangor and the
FederalTerritory
or more often known by its
acronym, SID is a registered non-profit and non-governmental voluntary
organization founded in 1990. SID takes on the mission to serve as
interpreters on the educational, judicial and other various fronts to
enable the Hearing Impaired Community the opportunity of equal rights and
access to information and communication. SID also provides a platform for
interpreters to share and exchange ideas on issues relating to
interpreting. Provides training, coordinationa and support for
interpreters. Also runs the Community Service Centre for the Deaf (CSCD).
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
Society of the Blind,
Malaysia
(SBM)
Name 2
(Pertubuhan Orang Cacat Penglihatan
Malaysia
)
Address
40-A, Jalan Padang Belia,
Brickfields,
50470
Kuala Lumpur
Organizes employment / career-based courses for members,
sports and recreation for members and their families, adult literacy
classes in Braille and languages, computer literacy training and
exploration, recording services for the blind, brailling services for
members and friends. Provides some welfare and educational assistance to
blind members, their children and blind students.
Category
Associations and Support Groups
State
Selangor and
Kuala
Lumpur
Name 1
WHEELS for the Physically Disabled and the Visually Impaired
Address
c/o St.Francis Xavier Church
135 Jalan Gasing, Petaling Jaya
,
46000
, Selangor
WHEELS for the Physically Disabled and Visually Impaired is an
initiative of the
SFXChurch
, providing
Ministry, Support and Fellowship for its members and members of the parish
Alzheimer's Disease Foundation
Malaysia
is a non-profit organisation set up to promote awareness of Alzheimer's
Disease in
Malaysia
, and
to help dementia patients and their families living in
Malaysia
.
Provides education, public awareness courses, therapy, support andf
counselling for families of persons with the disease. The monthly meetings of
the PJ-KL Alzheimer's Support Group are usually held at the above location
every last Saturday of each month.
Category
National Bodies
State
Selangor and
Kuala
Lumpur
Name 1
Association Of and For The Little People of
Malaysia
Name 2
(Little People Welfare Organization of
Malaysia
)
Address
c/o Sambhi Clinic, No. 17-19 Jalan Medan Tuanku,
Off Jalan Tunku Abdul Rahman,
50300 Wilayah Persekutuan Kuala Lumpur
Telephone
03-26824594
Fax
03-26929245
Email
azahari_aa@yahoo.com
Description
Association for persons with dwarfism
Category
National Bodies
State
Selangor and
Kuala
Lumpur
Name 1
Cleft Lip and Palate Association of
Malaysia
(CLAPAM)
Name 2
(Persatuan Klef Bibir dan Lelangit Malayisa)
Address
Lot 4-46A, 4th Floor, Box# 121,
Wisma Central,
Jalan Ampang
50450 Kuala Lumpur
Telephone
03-21621445, 016-2092211
Fax
03-21621445
Email
clapam@tm.net.my
Description
A voluntary group of parents and professionals. Aims to help
children with this birth defect to grow up looking better, speaking better
and fitting in better. CLAPAM provides support, advice, seminars and
education. Also can raise funding when needed.
This mailing list is dedicated to all people affected by Down
Syndrome in
Malaysia
.
It is a support group for parents and relatives to discuss their fears and
worries, to seek tips and advice, to learn and share knowledge about bringing
up children with special needs. Also welcome are friends, doctors, students,
therapists and other professionals who have experience with children of
special needs so that they may be able to answer questions regarding our
children. Come and share your thoughts and experiences with us. Exchange
ideas and situations or ask questions. Let’s promote learning and sharing
among each other. Let’s bring great changes into individuals with Down
Syndrome in
Malaysia
.
Anyone posting offensive messages will be banned.
Category
National Bodies
State
Selangor and
Kuala
Lumpur
Name 1
Institut Sosial
Malaysia
Name 2
(Kementrian Perpaduan Negara dan Pembangunan Masyarakat)
Address
Lot PT13856 Mukim Petaling Jaya
KM 10, Jalan Sungai Besi
57100
Kuala Lumpur
ISM was established to provide training and research courses for
social workers nationwide. Advocates continuing education and professionalism
in the fields of social services and development
